Kesha Dan's Lupus Survivor Story

Throughout my life, I have always had problems with upset stomach depending on what I ate. I have had walking pneumonia at the ages of 19, 24, and 29. I had shingles at the age of 26. January 2007 I was in and out of the emergency room for what I was told was allergies from changing climates. I am from Denver, CO lived in Atlanta, GA for two years, moved to Tahlequah, OK and am now back in Denver, CO due to my lupus complications. While in Tahlequah, OK I had a terrible cough that would keep me up at night, spots on my face neck and arm that would itch turn red and then turn black. I went to the dermatologist the throat and ear doctor, and even had to go see an eye doctor because I started to get blurred vision. The physician I was seeing from January 2007 up until I was admitted into the hospital was treating me with Prednisone tapers for my allergies, but he would send me home each time. During this time I was beginning to get weak, I stayed in bed all day if I could and at this time I was working at the hospital from 6am to 6pm and going to school on the college campus from 8am to 1pm. I was losing up to 12 pounds a week. I was always swollen around my foot and ankles. During this time I was really into traveling and was going any and everywhere someone would say come to. I already had 11 tattoos and decided to get another one; (on the top of my swollen foot) I still do not know what I was thinking about. Long story short the tattoo got infected and I started running a very high temperature and could not keep food down. For some reason everything I ate tasted awful and would make me vomit. I went back to the emergency room and was sent home once again with some medicine for nausea and my slight temperature and my foot infection. I would feel hot all the time but just thought I was coming down with the flu. When I received the nausea medicine it made my sleepy, so not only was I not eating, I slept through drinking to. One day early in the morning I woke up in a cold sweat, my whole bed was drenched. I had my sister pick me up and drop me off at the emergency room. The doctor I usually see was out that day, but they had me see his sister, she took my temperature 102.4 and checked my pulse and immediately started an IV on me for fluids. I was admitted by the infectious disease doctor because he thought the dark spots on my face were due to me having HIV. When that test came back negative that is when he started testing for everything else on the 4th day of my admission to the hospital. I was not diagnosed with Systemic Lupus Erythematosus (SLE) until the 16th day of my hospitalization. I had a bone marrow biopsy and a lymphnoid biopsy that removed four from my groin area to rule out lymphoma. The bone marrow biopsy and two days of determination from a panel of physicians decided my life change and diagnosis of lupus. I was in the hospital for 22 days. I look back on this now and am just grateful for the life I am given each day. I am on disability and have had to put continuing online education to get my bachelors degree on hold due to lack of concentration, memory loss and brain fog. I am unable to work full time and right now part time work would be difficult because of recent complications that are happening due to lupus activity. I was blessed to receive disability benefits my first time trying but pay so much for medications, surgeries and hospital visits that my income is very limited and I am barely making it. I make sure I smile every day, and try to stay positive it is hard but this type of attitude helps.

Meghan Hartsell's Lupus Survivor Story

Sixth months after I was diagnosed with Lupus, my sister, parents, and I all caught a 24 hour virus. They got better, but I didn't. I started having fevers. I was hospitalized for a weekend to find the source, but they were unable to find one. My fevers started getting better, and I was released. By Wednesday, the fevers were back. I began feeling weak and unable to stand up. I couldn't stay awake for longer than an hour or two, and felt extremely dehydrated. That Friday, I was asleep in my bed when my mom came running in my room. She had been about to go out to lunch with a few friends, but had a horrible feeling in the pit of her stomach. Her instinct was correct. My temperature had reached 103.5. She rushed me to the E.R., and by the time we got there my temperature had reach 104.2. The nurse had to take my blood pressure three times on two different machines because it was so low she thought it had to be an error. I was immediately put on I.V.s and monitors, and...to improve. I found out later that the 24 hour virus had triggered Macrophage Activation Syndrome, which occurs mainly in younger Lupus patients. This syndrome caused my immune system to go crazy and attack my organs very quickly. It was destroying my liver by the time I got to the E.R. If my mom had left the house that day like she had intended to, I would have had a stroke or a heart attack and most likely would have been dead by the time she returned. This all occured a week before my 18th birthday. It took almost a year for me to recover both mentally and physically. Now, my Lupus is under control and I hope to be in remission soon.
 

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